You Deserve to Be Understood
Living with fibromyalgia can mean waking up unsure how you will feel, adjusting plans without warning, and trying to explain symptoms that others cannot see.
We believe you deserve more than isolated snapshots of your health.
We are building Rapha to help you better understand what you experience over time, prepare for more informed conversations, and feel more supported throughout your care journey.
Stay informed about future Rapha resources, programs, research opportunities, and ways to participate.
You Carry More Than Other People May See
Fibromyalgia can affect much more than pain.
It may shape how you sleep, think, move, work, manage responsibilities, and connect with the people you care about.
Some days may feel manageable. Others may require you to slow down, change plans, or explain why something that was possible yesterday feels difficult today.
You may also spend a great deal of energy trying to remember what changed, what helped, what did not, and what you want to discuss at your next appointment.
We understand how exhausting that can be.
You are more than a diagnosis, and your health story is bigger than any single appointment
* National Fibromyalgia Association
10 MILLION:
Number of people estimated to be affected by fibromyalgia*
Better Understanding Begins With What You Experience Every Day
Your health is shaped by what happens between appointments.
Pain, sleep, energy, stress, movement, treatment, daily responsibilities, and quality of life may all change over time and influence one another.
We help you bring those experiences together so they are easier to see, understand, and discuss.
See Your Health Over Time
Instead of relying only on memory, you can begin building a clearer record of meaningful changes across days, weeks, and months.
Prepare for Better Conversations
A more complete picture can help you identify what matters most, ask more informed questions, and explain your experience more clearly to your care team.
Participate With Greater Confidence
Better understanding can help you take a more active role in your care without placing the responsibility for outcomes on you.
Better understanding supports better decisions.
Technology Should Support You, Not Take Over Your Care
We use technology to help organize the information you choose to share and make meaningful changes easier to recognize over time.
But technology is not your clinician.
It does not know your full context, make care decisions for you, or replace the relationship you have with your healthcare team.
People remain responsible for interpretation, judgment, empathy, and care.
You Choose What You Share
Your participation should be voluntary, clear, and meaningful, with the focus on helping explain your experiences.
Your Clinician Retains Clinical Judgment
Rapha is designed to support conversations and understanding, not replace diagnosis, treatment decisions, or professional expertise.
Your Experience Provides Context
What you share can help create a fuller picture of your health alongside the clinical information your care team already uses.
What We Learn With You May Help Improve What Comes Next.
Your experience matters first because it is yours.
When you choose to share what you are living through over time, you may gain a clearer view of your own health journey.
Your participation may also contribute to a deeper understanding of fibromyalgia.
As more people share their experiences, we may begin to see questions, similarities, differences, and potential patterns that no single patient story can reveal on its own.
Together, those experiences may help us:
- Better understand how fibromyalgia affects different people
- Ask stronger research questions
- Recognize areas that deserve closer study
- Support more informed care in the future
- Help the people who come after you feel less alone and better understood