Privacy Policy & Data Practices
Rapha Digital Health Website
Effective Date: October 1, 2026
Your Trust Matters to Us
At Rapha Digital Health (“Rapha,” “we,” “our,” or “us”), we believe that understanding your health begins with respecting your privacy.
We recognize that living with fibromyalgia and other chronic conditions can involve deeply personal experiences. Whether you are exploring our educational resources, learning about our approach, or choosing to stay connected with our community, you deserve to understand how your information is collected, used, and protected.
This Privacy Policy explains our practices regarding personal information collected through RaphaDH.com, including our website forms, communications, and related online activities.
Our goal is to be transparent about our practices and to give you meaningful choices about your information.
Information We Collect
Depending on how you interact with our website, we may collect the following categories of information.
Information You Provide Voluntarily
When you subscribe to updates, contact us, express interest in future programs, or participate in website activities, we may collect:
- Your name and email address
- Your contact information
- Your relationship to fibromyalgia or chronic healthcare, such as whether you identify as a patient, caregiver, clinician, or researcher
- Questions, comments, or other information you choose to share
- Your preferences for receiving communications from Rapha
Health-Related Information
Some visitors may voluntarily share information about their health experiences, symptoms, or conditions when contacting Rapha or expressing interest in future participation opportunities.
We recognize the sensitive nature of this information and seek to limit its collection to what is reasonably necessary for the purpose communicated to you.
Please do not submit detailed medical records, Social Security numbers, insurance identification numbers, or other sensitive information through general website contact forms unless Rapha specifically provides an appropriate, secure method for doing so.
Information Collected Automatically
When you visit our website, certain technical information may be collected through website infrastructure and, where enabled, analytics technologies. This may include:
- Internet Protocol (IP) address
- Browser and device information
- Operating system
- Pages visited and time spent on the website
- Referring websites
- General geographic information derived from technical data
- Cookie identifiers and similar online information
The information collected depends on the technologies operating on our website and your applicable privacy choices.
How We Use Your Information
Rapha may use personal information for the following purposes:
- Responding to your questions, inquiries, or requests
- Providing updates about Rapha, educational resources, and organizational developments
- Communicating about future programs, community activities, or research opportunities when appropriate
- Understanding visitor interests and improving website content and accessibility
- Maintaining website functionality, security, and performance
- Managing communication preferences
- Meeting applicable legal, regulatory, and operational obligations
We seek to use information in ways that are consistent with the purposes explained when it is collected.
Providing your contact information or expressing interest in Rapha does not automatically enroll you in a clinical program or research study.
Where separate participation, consent, or authorization is required, Rapha will provide additional information and an appropriate process before proceeding.
How We Handle Health-Related Information
Information about your health deserves particular care.
Rapha is developing technology and approaches intended to help people and healthcare professionals better understand health experiences over time.
As these offerings evolve, additional privacy notices, participation agreements, or consent procedures may apply.
For information collected through this public website:
- We seek to limit unnecessary collection of sensitive health details.
- We use health-related information only for disclosed and otherwise legally permitted purposes.
- We restrict access according to legitimate operational needs.
- We evaluate the privacy implications of sharing information with service providers.
- We provide additional disclosures and obtain consent or authorization where required by law.
This website Privacy Policy does not replace any separate privacy notice, informed consent document, or authorization that may apply to future clinical services, research activities, or patient-facing technologies.
Sharing and Disclosure of Information
Rapha may disclose personal information to third parties in the following circumstances:
Service Providers
We may work with vendors that support website hosting, communications, data storage, security, analytics, and other operational activities.
These providers may process information on our behalf in connection with their services, subject to applicable agreements and legal requirements.
Legal and Regulatory Requirements
We may disclose information when reasonably necessary to comply with applicable law, lawful legal process, or regulatory obligations.
Protection of Rights and Safety
We may disclose information when legally permitted and reasonably necessary to protect the rights, safety, or security of Rapha, website visitors, or others.
Business Transactions
Information may be disclosed or transferred in connection with a merger, acquisition, financing, restructuring, or sale of business assets, subject to applicable privacy and legal requirements.
With Your Direction or Consent
We may disclose information for additional purposes when you direct us to do so or provide any consent or authorization required by law.
I’m assuming there will be a separate policy/consent procedure for the sale of data so we only need to mention “consent or authorization” on this privacy page.
Cookies and Website Analytics
Cookies and similar technologies can help websites function, remember preferences, and understand visitor activity.
Depending on the tools enabled on RaphaDH.com, we may use:
- Essential technologies necessary for website functionality and security
- Analytics technologies that help us understand website usage and improve content
- Preference technologies that remember visitor selections
Where applicable law requires consent for nonessential technologies, we will provide an appropriate choice before using them.
You may also be able to manage cookies through your browser settings. Disabling certain technologies may affect website functionality.
Your Privacy Choices and Rights
We believe visitors should have meaningful choices about their personal information.
Depending on where you live and the laws that apply, you may have rights to:
- Request access to personal information we maintain about you
- Request correction of inaccurate personal information
- Request deletion of certain personal information
- Obtain a copy of certain information
- Withdraw consent for certain processing activities
- Opt out of certain uses or disclosures of personal information
- Appeal a decision regarding a privacy request, where applicable
These rights may be subject to legal exceptions and verification requirements.
To submit a privacy request, contact us at: scharf.karen@gmail.com
We will review and respond to requests in accordance with applicable law.
You may unsubscribe from promotional email communications at any time using the unsubscribe link included in those messages. Unsubscribing from promotional communications may not prevent us from sending necessary administrative or legally required notices.
Data Security
Rapha recognizes the importance of protecting personal information against unauthorized access, use, disclosure, alteration, and loss.
We use administrative, technical, and organizational safeguards appropriate to the nature of the information and the risks involved.
No website, electronic communication, or data storage system can be guaranteed to be completely secure.
We encourage visitors to avoid sending sensitive medical or financial information through ordinary email or general website forms.
If we become aware of a security incident involving personal information, we will investigate and provide notifications when required by applicable law.
How Long We Keep Information
We retain personal information for as long as reasonably necessary to fulfill the purposes described in this policy, including responding to requests, managing communications, maintaining records, and meeting legal obligations.
Retention periods may vary depending on the type of information, the reason it was collected, and applicable legal requirements.
When information is no longer needed, we take reasonable steps to delete, de-identify, or otherwise appropriately dispose of it, subject to applicable requirements.
Children’s Privacy
RaphaDH.com is intended for a general audience of adults seeking information about Rapha and fibromyalgia.
We do not knowingly collect personal information directly from children under 13 through this public website without the consent required by applicable law.
If you believe a child has provided personal information to us inappropriately, please contact us at scharf.karen@gmail.com so we can review the matter and take appropriate action.
Any future programs involving minors will be subject to separate eligibility, privacy, and consent requirements.
External Websites and Resources
Our website may link to third-party organizations, educational materials, research publications, or other external resources.
These websites operate independently and may have different privacy policies and data practices.
We encourage visitors to review the privacy information provided by third-party websites before submitting personal information.
Rapha is not responsible for the privacy practices of websites we do not control.
Healthcare Information and HIPAA
Rapha is developing digital health capabilities, but not all information collected by a healthcare-related organization is necessarily protected health information under the Health Insurance Portability and Accountability Act (HIPAA).
Whether HIPAA applies depends on the organization, the services provided, the information involved, and the circumstances in which that information is collected or processed.
Where Rapha operates in a capacity subject to HIPAA, we will comply with applicable requirements and provide any additional notices required by law.
Other federal and state privacy and consumer protection laws may apply to health-related information collected outside HIPAA.
This public website policy should not be interpreted as a substitute for any legally required HIPAA Notice of Privacy Practices.
Changes to This Privacy Policy
We may update this Privacy Policy as our website, services, technologies, or legal obligations change.
When changes are made, we will update the effective date at the top of this page and provide additional notice when required by law.
We encourage visitors to review this page periodically to stay informed about our privacy practices.
Contact Us
If you have questions about this Privacy Policy, your personal information, or our privacy practices, please contact:
Rapha Digital Health
Privacy Contact: scharf.karen@gmail.com
Mailing Address: 6101 North Keystone, Ste 100 #1056, Indianapolis IN 46220
Website: https://raphadh.com
We appreciate the trust you place in Rapha and recognize our responsibility to treat your information with care and respect.